What is involved?
If you decide to take part, you will be asked to read an information sheet and sign a consent form to confirm that you understand and agree to participate in the DETECT-2 study.
You will be asked to complete a simple questionnaire about yourself which will include details about your lifestyle, medical history, family, and your physical and mental well-being.
You will then be allocated at random into one of the two groups in the study. Participants cannot choose the group they are allocated to.
The two groups are:
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Participants who receive genetic testing information on a specially developed web-app decision aid – the ‘Web-App’. This group will be offered genetic testing at home and will be provided counselling and support via a dedicated telephone helpline.
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Participants who receive genetic testing information from a member of their cancer team. This group will be offered genetic testing in hospital.
After making your decision to accept or decline genetic testing you will be asked to complete questionnaires about your decision.
If you decide to accept genetic testing, you will also be asked to complete questionnaires at three weeks, six months, and twelve months after you receive your genetic testing results. These will ask questions about how you feel about your decision to have genetic testing and your physical and mental well-being and quality of life.